Skin Findings in EDS/HSD

Most connective tissue disorders are characterized by having “velvety, soft skin”. Your friends may say “how is your skin so soft” or “what kind of lotion do you use” (when you don’t even use lotion). There is also evidence that shows that those with EDS have skin that is almost translucent, meaning that you can easily see the veins and vessels underneath.

But why is this? While there is not much extensive research into connective tissue disorders, particularly Ehlers Danlos, it is thought that this is related to a defect in the collagen. Skin manifestations are more common in the classical Ehlers Danlos type, which is a bit more rare.

Easy bruising is also a sign of a connective tissue disorder. Easy bruising from bumping your elbow or knee on something is a symptom of most forms of EDS or connective tissue disorders. This is because of an increased fragility of the dermal blood capillaries and the poor structural integrity of the skin!

Our skin is also very fragile. And since we have poor joint and muscle control because of joint laxity, we fall a lot, giving our skin lots of opportunities to acquire scars. These scars are called atrophic scars, but are also referred to as cigarette paper scars. They are very thin and crinkly, and are caused by the skin not being able to regenerate healthy, new tissue.

Although there is no specific treatment for EDS skin manifestations, precautions will definitely lessen the chances of accidental skin trauma, scarring, and bruising. If you have particularly sharp edges on your counters or furniture, cover them up! Little things can make the biggest difference.

If you suspect you have EDS based on symptoms you’re experiencing, it’s important to visit your doctor. They will be able to refer you to the correct specialists, and can you with a few tests or by ruling out other similar conditions.This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.